AVON, Conn. — Earlier this year, the CdLS Foundation launched a series of virtual support groups for US-based and international parents with children who have Cornelia de Lange Syndrome (CdLS).

CdLS is a rare genetic spectrum disorder that causes a broad range of potential physical, cognitive and medical challenges.

The new monthly gathering is a space for caregivers to share and support one another. The virtual sessions’ design helps connect with others who understand CdLS’ unique journey and experience, share and receive meaningful advice, and feel heard, supported, and uplifted.

A family member who attended the first session said, “I felt very comfortable sharing in the group and experienced an immediate connection with group members.”

The Foundation created the support groups to ensure that no parent with a child diagnosed with CdLS walks that path alone.

Sessions are held on the first Thursday of every month and are dedicated to community and support.

For more information, contact the Family Service Team at familyservicesteam@CdLSusa.org.

To learn more about CdLS or the CdLS Foundation, visit CdLSusa.org.